Dear Researcher

I write my blog to share with others facing the same journey I’ve taken.  I am delighted you are reading my blog as I think there is so much we can all learn from one another’s perspective and I can appreciate how difficult it is to gain access to such data.  

I read a lot of cancer and nutrition research papers and I wrote an article about this for Mission Remission from a patient perspective as I think it is entirely possible for papers to be written to include a wider audience: Making Research Papers work for patients

I was curious to see whether this was common.  I know from speaking to “breast cancer” friends it’s as common as swapping recipes but from a Twitter poll, I found the following result: (of course people on social media aren’t representative of total population but the findings are quite significant)

Please observe my statement of ethical use:

You are welcome to use my blog as data for your research.  Please drop me a message to let me know by contacting me personally (see my “About” page) or by posting a comment on this page.  I ask that you attribute quotes directly to me, linking back to my blog, and that you share your research results with me.  I reserve the right to ask you to use a different quote and ask that you don’t take my words out of context to fit a hypothesis.  This statement can be used as informed consent.

This statement was adapted from the article below with permission from Marie Ennis-O’Connor and Rebecca J. Hogue.

We need to talk about ethics and social media: A conversation